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Location:
HCC: Room 306A
Presentation Time:
5/20/2009 10:35:00 AM
Title:
Health Information Connections for Persons with Disabilities
Author Block:
Deborah L. Lauseng, InfoPoint Services Coordinator; Anna Ercoli Schnitzer, Liaison Librarian and Outreach Coordinator; Marisa Conte, Clinical and Translational Sciences Liaison; Patricia W. Martin, Liaison Librarian; Health Sciences Libraries; University of Michigan, Ann Arbor, MI
Abstract:
Objective: The goal of this project is to assess the health information requirements of individuals with disabilities and to address these needs by presenting reliable online health information resources to them through a variety of methods.
Methods: The Health Sciences Libraries, University of Michigan, with a consumer health subcontract through the National Library of Medicine, National Network of Libraries of Medicine, Greater Midwest Region, have established an outreach effort to the population with disabilities in Washtenaw County. Following three successful focus groups, the library staff designed small group instructional sessions, as well as online tutorials, with an emphasis on ease of use, incorporating design features for accessibility for various types of disabilities. Working in conjunction with the Ann Arbor Center for Independent Living and other community partners that serve the local population with disabilities, our instructional focus has been on MedlinePlus, emphasizing Go Local, Clinical Trials, and the National Institutes of Health (NIH) NIHSeniorHealth.
Results: Our findings indicate that people with disabilities have a variety of health information needs. They seek both general and specific health information, including rare conditions, and they are interested in discovering reliable local resources, including health practitioners and support groups. We also addressed the challenge of creating appropriate methods of distributing reliable health information to accommodate the wide range of individual needs in the population with disabilities. Specific results will be shared.
Conclusion: Consumers with disabilities are in need of reliable health information, and they need it in easily accessible formats.
 
 

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